Juan Carlos confirmed a few days ago that when he touches it, he decided not to do the weakness of the trachea to increase his hope in life. The source and former coach was diagnosed with Ela in February 2020 and participated tonight in the wonderful Cope game with Juanma Castaño.
His great position and how they viewed him around him: “I will tell you for the first time something I felt for a long time, and that is that my presence, especially with people who do not know anything, the first thing that I created is a smile. He feels that, he realizes that this is the pure energy to move forward“.
Friends, family and pain: “No, I think this smile, which I wear how I carry the disease, generates joy in what this situation is. And I realize this, for me, it is a motive, it is not a commitment. Knowing that the people I want will be better if I have a good position, because it is something every morning when I wake up and keep it.”
The unconditional love of his wife: “What I felt is an unconditional love for my wife. As you can imagine, Maria, from the first day, is on my side to do everything I need and help me in everything, with all her love and respect. Then, she imagines that in such a complex situation, this person, who accompanied me for many years, is very close to the glory of the blessed.”
A few of the trachea and its decision not to take it: “I fell 3 years ago on the last commandments and I expected that I would do that, but over time I reached this result, and I have been contemplated, and I will not do that because I managed to perceive it in other colleagues of what the quality of life is. The quality of life is not enough for me to live with the artificial respiratory system.
Ela Approval: “It has achieved the most complex matter after many years of work, among many people affected, that some of them are no longer with us, the family, and associations … I think approval of the law has been fulfilled. But it is now the most important thing, which is that the tools of help for all the affected people reach the home. Slowly, which consists of the ability to attend and take care of people who need ventilation with the help of 24 hours, so that they can determine freely if it should be done. Aerobic or not.
His great victory: “This is a victory for the team. I have always worked as one team and did not cost to continue doing this in the Ela team. It is something that makes me feel satisfied and gave me the opportunity to continue to feel the benefit.”
He cries: “From today, I tell our children that I have not crying. I don’t think this is a good thing, and I think crying relieves many occasions, but because of my way to be assigned to me. Sometimes I envy people who are able to direct this method and reduce it.”
How to express the feelings around you.
Do not miss anything: “I think there is a reason. I think I have benefited from the 57 years I have. When I wanted or wanted to do something I had thrown into the complex. Now, with this bike, when I wanted to leave, I did not stand at home. So, I have a feeling that I lived with this bike, and with this filling, it makes it now quieter and miss anything.”
How do you want everything to be when you are not: “I think the only thing I do not deserve, on that day that is no longer, is that they feel sorry or sad because I am not.
The hardness of this disease: “For this reason when I listened to people to say:” You will fight Ela … “I am
The harshest disease: “This is very personal and I can talk about it. It is clear that it is cruel. It is difficult to see how your body deteriorates, but this gives meaning to life because if I am in addition to this deterioration, I did not know who I am talking to from some time I am, so it will not be a logical matter.
